Tuesday, May 09, 2006

We all have the same symptoms!

Morgellons folk say they all have the same symptoms.
  • You research the internet and so easily discover that Elliot's disease, National United Skin Parasites Association, the Fiber Disease, and Morgellons are all one and the same. Ironically, all of the people with the exact same symptoms that you have, have been receiving the same faulty diagnosis
What are these symptoms? What does MRF have to say? Well, they have two pages, one on "symptoms, and one that proports to be a case definition. Symptoms:

http://www.morgellons.org/symptoms.html
Most individuals with this disease report disturbing crawling, stinging, and biting sensations, as well as non-healing skin lesions, which are associated with highly unusual structures. These structures can be described as fiber-like or filamentous, and are the most striking feature of this disease. In addition, patients report the presence of seed-like granules and black speck-like material associated with their skin.[...] More significant than skin symptoms, in terms of the diminished quality of life of the individual with this illness, are symptoms unrelated to skin, to include Chronic Fatigue Syndrome (CFS), Fibromyalgia (ME), joint pain, and significant problems with concentration and memory.
Remarkably, not all people with this disease have overt skin lesions, as some individuals report intact skin. The troubling sensations and accompanying physical structures, are the consistent clues to this infectious process


http://www.morgellons.org/casedef.html
[...]The following case definition of Morgellons disease has been developed by physicians on the medical advisory board of the Morgellons Research Foundation[...]

Now, I'm not going to post the entire thing here, as it's quite long. But I'll paraphrase the important parts:

  • Lesions may or may not be present, they might be a symptom of the disease, or the result of scratching. They might look like pimples, or hives, and may or may not contain pus.
  • Crawling sensations can occur anywhere on the body. Sometimes insects or parasites are visible.
  • Fatigue is always present.
  • There will be behavioral effects that are diagnosed as psychiatric disorders (the implication is that they do not have these disorders, but the symptoms indicate Morgellons).
  • Fibers are reported in and on lesions and on the skin. Fibers may be any color size or shape. Granuals of any size or shape are found on the lesions and skin. Fuzzballs up to 3mm in size are found on lesions and skin.
  • Additonal symptoms include: vision changes, neurological changes, gastrointestinal changes, skin changes, Musculoskeletal changes.
Other than the fibers, what we have here is a catch-all of symptoms. Anyone who has some chronic condition cannot fail to have some of these symptoms. NOBODY has them all.

One can become a "Morgellons" sufferer simply by matching a few of your symptoms to the list, and then examining your skin for fibers - which everyone has on their skin.

What about those other conditions mentioned: Elliot's Disease? Well, Elliot's Disease research Library links to this article about "this disease"
http://explorepub.com/articles/omar_10_2.html#top
This gives a simpler definition:
  • It is characterized by neurological sensation of movement subcutaneously and/or in deeper tissues and cavities that is usually associated with mucoid cutaneous lesions from which one or more species of arthropods as well as unidentified fibers may be recovered.
Unfortunately, although this is a shorter definition, it's actually even less precise than the Morgellons.org definition. We have a "sensation of movement" either on the skin or somewhere on the body, usually with lesions but not always, and either with or without arthropods and with or without fibers. Based on that definition - I've got it, since my scalp itches a bit right now. Yours probably does too.

Moving on, NUSPA has a nice page of symptoms:

http://www.skinparasites.com/id12.html

They focus on a very broad range of symptoms of infestation by a parasite, insomnia and the specks and fibers. Nowheres does it mention fatigue or any neurological complain. This is obviously very different to Morgellons.

Then there is "The Fiber Disease" - this seems to be a term popularized by the biology-online forum thread.
http://www.biology-online.org/biology-forum/about1958.html
Unfortunately, they don't list the symptoms anywhere I could find. But individual posters report a very wide range of symtoms.

Okay, finally my point:

Not everyone has the same thing.

There are so many different symptoms, it's impossible to describe this as "a disease" or even "a syndrome". Everyone has different symptoms, everyone responds differently to treatments. The term "Morgellons" was invented to describe a child's skin problems, which he is now cured of, and which have no relation to the symptoms described by the vast majority of sufferers.

42 Comments:

At 7:15 AM, Blogger Smileykins said...

I was gonna comment, but one of my cats pounced on my keyboard and yonder she blew.

How come people are scared of harmless fibers? How come they don't learn anything about their other health conditons? (God forbid, I'm not refering to Lyme disease). Why all the martyrdom for a non-existence disease?

Mama used to say when a person is crazy, they're always the last to know.

 
At 9:45 AM, Anonymous Anonymous said...

Why are you pushing this crazy thing?

This is really quite cruel.

I see you so want this to be a mental disease.

There is a physical component to this.

The lesions are real, they are filled with parasites.

Ever heard of Chagas Disease?

Ever hear of cyanobacteria?

Protothecosis, a fungal disease?

It if fungal, algae-related, fermentatious, protozoan.

Now, if one has this going on in their bodies, do you not think that something physical is wrong?

Please, stop the point of DOP, because, DOP is what? how is it cured? Even the psychologists and psychiatrist will only give meds, but, will not work with the patient in trying to find out why they are DOP.

So, you see no one will look at this, because, DOP is not the diagnosis, it is the placebo, to not look at parasites.

Western med is so afraid of worms, bugs, parasites.

Even China has this worm and they cannot identify it.

So, you think you are so smart by using the tried and true all out attacks and poking fun at people who suffer, you are sad, here.

We are not martyrs, but, we may be for the right to health, treatment, this is about neglect and abuse as patients.

I have been fighting to prove I am not crazy all my life, dysfunctional families makes one crazy, while growing up, but, a learned person knows they can overcome that, and I have.

This is a physical condition, but, so many want to make this a mental condition, of which it is not.

These lesions, again, are real.
I am functional, despite this and despite the scars this has produced.

It is similar to Leprosy. Do you know what that is?

Please, why the attacks, I do not get it.

Either you know what this is, and are trying to make it psychological, when they do not have answers, or you are just plain mean.

Wingedschiff

 
At 10:04 AM, Blogger Margellons said...

Of course the physical symptoms are real. They probably have a physical cause as well. The thing I'm taking issue with is that there is a distinct disease that everyone has caused by some unknown organism.

I'm familiar with all the things you mentioned. Quite possible some people have some problems with some of the things you mentioned.

A few also have DOP. This is nothing to be ashamed of. It's just another kind of illness.

You should read up a little on DOP. It's fascinating.

 
At 3:47 PM, Anonymous Anonymous said...

I have read up on DOP, but there is no clear psycological protocol to treat it. That is what I am saying. I do not know if it is true that there really are DOP people. I think a lot of mental diagnosis has been wrong in the past.

I am saying that when scientific paradigms shift, then one will clearly see where this DOP diagnosis has no basis. It was used to cover for things that could have existed.

Most DOP explanations will say that of course this patient could have parasites, but they are DOP.

Now, how does one reach that conclusion?

Good discussion.

Wingedschiff

 
At 5:17 PM, Blogger Margellons said...

DOP is a real condition - albeit a rare one. But it's been around since the 1800's with many very well documents.

Of course patients are going to be mis-diagnosed sometimes. That happens with all conditions.

People are often treated with psychiatric methods, which work, which would seem to demonstrate that there were no parasites.

There are many differnet cases. Don't lump everything together.

Here's the best site on this topic:

http://delusion.ucdavis.edu/treatment.html

 
At 5:32 PM, Anonymous Anonymous said...

And of course, that would be from an entirely liberal point of view.

Parasites are not a psychiatric condition. It is a physical one.

The psychiatric treatment is drugs.
That we do not need.

We are looking at cause, and this is so entirely foreign to most psychiatrists and doctors.

You only treat the symptoms, which gets us nowhere.

Noone can think clearly, because of the mind altering drugs. No psychological information or psychotherapy is available to really treat DOP. I am not talking about other psychological problems, just DOP.

And, doctors who send us to psychiatrists, are practicing outside of their boundaries.

That seems to be the center of all of this. Doctors have no right to diagnose us DOP, to declare us delusional, only psychiatrists and psychologists can do this, and they have no right either, because they to are crossing the physical symptom barrier.

So, we get sent back and forth, and never are fully treated, because the real cause, a pathogen, is not being looked at.

There is a need for pathologists in the dermatology departments and centers. But, they are not to be found because they were booted out of the Dermatology Centers. For political reasons.

So, if we find the correct doctor to look at this, a dermatopathologist, then we may get somewhere. They look at lesions.

Wingedschiff

 
At 5:59 PM, Blogger Margellons said...

Your doctor can refer you to a psychologist if he thinks there is a probability of DOP (after eliminating other possibilites).

You should read that site. However it also says:


"It is pointless to argue with the sufferer as there is no way to sway them."

but also:

"Management of patients with delusional parasitosis is best handled through the cooperation of dermatologists, psychiatrists, and entomologists or parasitologists. Psychiatrists are needed to confirm the diagnosis of delusional parasitosis and to make the diagnosis of any underlying psychiatric disorder in the case of secondary functional delusional parasitosis. In addition, psychiatrists are able to conduct psychotherapy and provide a long-term commitment during the treatment phase. Sufferers are often reluctant to consult a psychiatrist, and if the suggestion to do so is not done carefully, the patient may seek help from another physician. Dermatologists need to be supportive about the patient’s symptoms and suffering and should suggest that a psychiatrist may be able to help the patient live with the problem more comfortably."

"It is essential to rule out the presence of environmental irritants and/or actual parasites, allergens, or other organisms that cause contact dermatitis. Although many arthropods may bite humans, for the majority of species these would be unusual occurrences. The only groups likely to cause ongoing problems include mites, fleas and lice."

http://delusion.ucdavis.edu/treatment.html

 
At 7:41 PM, Blogger Smileykins said...

My first recollections with eczema was way back in nineteen-hunderd-and-fitty-
nine. I was the same age as little Drew Leitao had been when his mom did something my mama shore didn't do. Well, I suppose I should have probably died by now, having fibers in my skin all these years, but dang it, we always thought it was the most normal thing there was. Never thought about saying I was "sprouting fibers".

I outgrew it around the same age as little Drew is now, too, like all infants and toddlers with eczema. As far as I knew, that was the end of it then. Nope, I had something going on in my early twenties, and went to a dermatologist and he gave me the ugly truth. I had eczema, and I had it for life, and there is no cure. I treated with several prescription topicals until we found one that helped my symptoms the most. It was no fun, for about seven years, living with learning how to cope with it, and making a whole lot of alterations in my day-to-day life. Scratching every night in my sleep, I had a bloody mess when I woke up about every day. Then it went into remission again.

My kid got it too, not because it's contagious, but because of heredity. Wow, we never thought anything of fibers in her skin either, and she's still kickin'. We're in remission from eczema, but contact dermatitis, in a much lesser form than that is, is a fact of life for us.

Still, we have never thought anything to be wrong, to have environmental fibers and other crap collect on and in our skin. We sure get a histamine reaction when things we don't even often suspect makes contact with our skin. Burning, stinging, itching, something awful.

Just yesterday, I was driving down the road, perspiring, and ooooooh, that gave me the itchie-crawly no-see-ums all over. Me and my kid live with it. It's uncomfortable, to be sure, but what makes morgie people not accept diagnoses of SKIN ALLERGIES?

They're easy enough to arrive at a conclusion on your own, even, without the assistance of a doctor, although we've been seen by several, over the years, and they've been quite competent and never had to get down with a scope and peer for something I insisted was there, that they couldn't see.

What separates the morgies, especially the ones that have been diagnosed with atopic dermatitis -- eczema, as well as their CHILDREN, from us?

According to what Dr. Jay Adams, a Carson City dermatologist who is president of the Northern Nevada Dermatological Association, said, was that doctors usually get a sense of the patient during the visit and may suspect they’re dealing with a delusional person. Being a dermatological expert, he agrees that, “Everybody has fibers and foreign objects on their skin, even things that live on them although we don’t usually like to think about it,” Adams said. “For the most part people don’t obsess about that. There definitely are a group of patients who have focused on the idea that things are crawling under their skins and will take extreme measures to prove that to you. It can take over their lives.” Adams said it’s possible some patients may be misdiagnosed with delusions when they actually may have a physical cause for their symptoms. But he said that’s rare. “I think that patients with delusions are a far more common answer than any of the patients who may really have parasites. Delusions of parasitosis is real. Most of the patients are delusional.” He said that under magnification, the samples usually turn out to be lint. As for the black specks and other things the patients get off their skins, he said it’s possible to scratch, and poke and peel away parts of the skin tissue or just collect the lint that can be found anywhere. “You don’t want to encourage people to further resist the idea that they are not infested with parasites,” Adams said. “It’s dangerous to reinforce their delusion.”

 
At 8:44 PM, Anonymous Anonymous said...

But see you are saying one is delusional at the beginning, no parasite tests are done, uneless one begs for them or finds out on their own. Are labs too pristine for fecal matter? Or have the pathologists been bought out too.
Again, the pathologists were taken out of Derm centers. Herein, lies a big problem.

Now, all kinds of emerging diseases are upon us, according to the CDC, but are there any tests for these? No.

So why report it? Just to scare people.

By the way, do you know what causes exzema?

We are looking for cause, come on the DOP does not go here.

We are told by the primary care person we are DOP. Crossing practice barriers.

You know that mental labels, can kill. To say someone has delusional parasitosis, without any tests for parasites is absurd and wrong.

Again, I say it is foreign for doctors to actually do tests for worms, or parasites, they just want them to go away.

A change has happened in the environment. Bacteria is being used all over the world to clean up pollution. This is putting more bacteria in the air, alone, to deal with. We already have enough bacteria, then to use it in landfills to ferment, and eat away at garbage and create biofilms, now if it can be done without creating more biofilm, then this dried, will not go in the air.

There are many things that could cause this. But, none are looked at.

It is so much easier to label DOP than to look at environmental bacteria, microbes, nematodes, and so on.

If we have so many wonderful tests on the horizon for the most minute thing, nano level, and can change proteins in horizontal gene transfer in many ways, and yet not
be able to look at our skin in a more detailed way?

There is something missing here.
Gene therapy is on the horizon, and what is so damn funny, is that most of what sickness is, has to do with bacteria, not genes.

Wingedschiff

 
At 9:40 PM, Blogger Margellons said...

Can you give any evidence to support the recent shift in emphasis in dermatopathology that you imply?

 
At 9:19 AM, Anonymous Anonymous said...

Reed and Weems, the Reed Patch,
It may not be popular, but I do think it is correct.

http://www.dermanities.com/detail.asp?article=185

http://www.thedoctorsdoctor.com/pathologists/why_dermatopathologist.htm

http://www.xmission.com/~bweems/rjrpatch2.htm

Here is a few.

Winged schiff

 
At 9:38 AM, Anonymous PSYCHOLOGIST said...

Ticks feed from minutes to years. Except for fleas, lice, mites, not much to worry about in terms of infestation. What serious systemic, neurological and visceral disease associated with vectors and generally known to be parasitic in etiology? When delayed diagnosis and treatment can affect prognosis, morbidity and mortality to an alarming extent, is it not reckless to rush to embrace DOP dx?

 
At 9:44 AM, Blogger Margellons said...

Those links don't show anything. In fact they show that dermatopathology is still alive and well, and an often important part of the dermatological diagnostic process.

I think you are just angry because your doctor determined that an analysis by a dermatopathologist was not necessary in your case, and you thought that it was.

Why did you think this?

 
At 9:48 AM, Blogger Margellons said...

Indeed, "Psychologist", which is why they should not rush. In fact, they are quite specifically directed to eliminate other possibilites first. And they do.

 
At 11:08 AM, Anonymous Anonymous said...

But, depending where you live, dermatologists know beans about pathology.

This is pathological, why is everyone afraid of that word?

Bacteria based, not gene related.

Only a few Mendelian inherited genes from mutations are gene related diseases.

The rest is all bacteria, microbes, fungi, algae, lichen,
natural substances, that have been altered.

Doctors will not go there, because they do not know.

I am angry because of the medical lies told us.

The premise for medicine is scewed.

Do you not see that?

www.euroamericanhealth.com

Wake up, you are living in a world so predominated by associations and medical people who treat symptoms, and not the cause.

If one finds the cause, much money is lost in drug production, because they are not needed, when they only treat the symptoms,

Quality of life, not quantity is treated.

Whole body approach to healing is very trustworthy.

Polymer fibers are in chemtrails.

Polymer biodegrading inorganic is incorporated into organic.

Ever heard of plastic degradation, metal degradation, what stronger as catalyst would work to degrade and start the process of degrading.

Fibers are excellent at this, whether it be fungal, protist, or bacteria, metal eating bacteria.

Where has the plankton gone?

Carbon sequestering.

Many inorganic are not included with organic.

So, even if we find the natural substance, which could be genetically modified, in the wrong manner, or if we find inorganic substances, as particles, that cause skin to react or change the DNA of a person.

The science is there.

Wingedschiff

 
At 1:32 PM, Blogger Smileykins said...

WingedSchiff, excuse me for not being able to address the questions you've posed to me, in reference to my comments, right now.

However, upon seeing your last statement, "There is something missing here.
Gene therapy is on the horizon, and what is so damn funny, is that most of what sickness is, has to do with bacteria, not genes",

I would implore you to NOT be concerned with the rest of society, but to be concerned in whatever YOU, as an individual, have that may be causing you to be in a state of ill health.

For example (aside from being disabled from an on the job injury), my genetic makeup "IS" the sole reason for my conditions, not some elusive bacteria.

I think back to a post on a morgie board, that I read one time, where a person was asking if anyone else noticed that on some days, "their morgies" wouldn't allow them to move a bucket of water, or a foot stool, but that on other days, they allow one to have superhuman-like strength, enough, to lift a sofa.

Do you see nothing wrong in such a comment as that?

"Morgies" is/are (?) not causing that to happen for that particular person.

 
At 2:04 PM, Blogger Smileykins said...

This comment has been removed by a blog administrator.

 
At 2:33 PM, Blogger Smileykins said...

There is an old saying:

"What I fear... I create."

 
At 8:16 PM, Anonymous Anonymous said...

Okay, if we are talking genetic makeup, I am a carrier of muscular dystrophy, a gene mutated disease.

Now, it is on my extra X chromosome.

Now, if that is messed with in any way by genetically altered micro-organisms, protists, or those genes are homologous to what is in the mutated form in my X chromosome
then my genes would be involved, I see what you mean there.

I wonder about our own muscle nerve fibers, if that is what we see and med folks cannot recognize them, some are just like polymer.

Bechamp talked about fibrin in the blood. Can be seen by dark field microscopy.

Wingedschiff

 
At 10:16 PM, Blogger Smileykins said...

Q. Why are you pushing this crazy thing?
A. To get people to think whether it's applicable to them. I'm sorry if it carries negative connotations, but really, the word, "crazy" has been de-stigmatized, for quite some time now, and the field of mental health is not the same, today, as it once was. I apologize for offending you. I won't apologize for saying that the creation of something called morgellons disease IS CRAZY, and there isn't a befitting word in the english language to express my disgust, disdain, and disapproval.

Q. Ever heard of Chagas Disease?
A. Yes
Q. Ever hear of cyanobacteria?
A. Yes
Q. Protothecosis, a fungal disease?
A. Yes

Q. Now, if one has this going on in their bodies, do you not think that something physical is wrong?
A. Certainly

Q. Please, stop the point of DOP, because, DOP is what? how is it cured?
A. I didn't realize it, if I tried making a point of DOP. Based upon the viewing of posts on message boards, it appears to me that a lot of people who believe in morgellons disease are very likely to be, especially when they're diagnosed to be, DOP. I believe that one treats it, in hopes of it being cured, with the medication prescibed by their treating physician.
I think all morgellons' believers have paranoia/phobias. Most are obsessive/compulsive, without question. It looks as though some may have borderline personalities, be bipolar, have attention deficit disorder, quite a few mental health related things that are treatable. Someone admitted being diagnosed with psychosis. Delusional thinking is blatantly, BLATANTLY APPARENT in all who subscribe to the morgellons' school of thought.

Q. It is similar to Leprosy. Do you know what that is?
A. Yes

WingedSchiff, if at all possible, I'd suggest you try to ignore the reports of emerging diseases from the CDC, if they do, indeed, scare you, but reporting them is a part of the CDC's job.

I don't know if these were directed to me, but since I mentioned eczema...

Q. By the way, do you know what causes exzema?
A. Yes

Q. If we have so many wonderful tests on the horizon for the most minute thing, nano level, and can change proteins in horizontal gene transfer in many ways, and yet notbe able to look at
our skin in a more detailed way?
A. How is it that you have come to think that anyone's skin "needs" to be looked at in a more detailed way? I'm sorry, my answer is in the form of a question, because I fail to see the relevance.

Last, but not least, "Even China has this worm and they cannot identify it."
Well, maybe you should call China up and tell 'em that you know?

(please)

You made a referrence to my thinking I'm so smart...
Yes, I am, in every sense of the word.

Now, forgive me, but please try to wake up, if you can.

 
At 10:36 PM, Blogger Smileykins said...

WTF???

WingedSchiff ?---> "Now, if that is messed with in any way by genetically altered micro-organisms, protists, or those genes are homologous to what is in the mutated form in my X chromosome
then my genes would be involved, I see what you mean there."

OH NO...YOU DO "NOT" SEE WHAT I MEAN THERE!!!!

GET YOUR HEAD OUT FROM WHERE IT IS!!!!

 
At 11:25 PM, Anonymous Anonymous said...

Okay, what is your point?

Winged schiff

 
At 12:54 AM, Blogger Smileykins said...

My point is, that you have a lot of fear in your words, and
you seem to be focusing your attention in places that do nothing to assist you, whatsoever.

I'm sorry, I don't know your history, or what you may have, Winged schiff, other than from your comment, "The lesions are real, they are filled with parasites."

Parasites aren't difficult to detect, if doctor has reason to suspect them, based upon patient presentation.

If you wouldn't mind sharing what your symptoms are, I'd be more than happy to try and help you get on the right track, and get to the bottom of it.

If you know, how did you contract parasites, and, had you been to a region where they're endemic, or, have you, or do you, live in a rural area?

 
At 6:41 PM, Anonymous Anonymous said...

I'd like to make a distinction regarding delusional parasitosis. I think it's irresponsible to use the lable "crazy" to refer to it, and further dissuades patients from accepting that as a diagnosis. The name itself is a bit unfortunate in that respect.

I have no doubt that the symptoms are real. That the itching, the lesions, the burning, the pus, the sensation of things crawling around within the lesion, are real. It is a real problem. But the *source* of the problem is the thing in question. There are many organic neural disorders that cause physical symptoms. It doesn't mean you're "crazy" and it doesn't mean you're making things up. It's somewhat akin to having a metabolic disorder... you have an existing, underlying condition that is exacerbated by physical, environmental or other types of stress. The problem is no less real and no less serious - the distinction is that it has to do with your nervous system instead of your liver, for example.

Things like this become labelled as "mental" because we do not understand the nervous system well enough to specifically identify the problem - and, sometimes, there are a range of problems. Instead, the focus is often on finding medications that will treat the problem, while we continue to study the brain in order to better understand it.

Bottom line, something like "delusional parasitosis" doesn't mean you're crazy. It doesn't mean you had a bad home life or a bad childhood. It doesn't mean you are to blame for what's happening. It doesn't mean your symptoms are any less real. What it means is that the root of the problem is in an organ we don't understand well enough yet - so people label it in unflattering ways, and we have to rely on treatment instead of finding the precise cause until we can understand the nervous system better. I hope that more people can understand this and be more open to such a diagnosis.

 
At 10:18 PM, Blogger Smileykins said...

Okay, but hang on Winged schiff.

I haven't made any distinction of DOP as being "crazy". That's not my call. I read morgie message boards and it's too damned evident that there's a whole helluva lot more going on with some people than just simple little DOP.

I don't understand DOP, but it seems to me, that if people were suffering as badly as they claim they are, and "maybe" (?) if they weren't handed over a fake-disease- called-morgellons, that "possibly" (?) some people "might" (?) trust their doctors' judgement.

Of course, I don't know, because I am only able to think within the frame of mind that I have, that "if" a person was suffering badly enough, that they would want it to end, and try what their doctor recommends, and not see them as their enemy. I don't understand it, because that apparently isn't the way it goes.

I mean, heck, if nothing else, it would almost seem to be worth it, just to prove to the doctor that the medicine hasn't stopped any of the occurences yet. Work- with-the-doctors, is all I am left thinking, and why not try finding out whether an adequate dosage of "whatever" can alleviate all of the claimed sufferings. Then, work with the doctors in backing back off of the drug, to see if a normal life can be resumed.

Sometimes crazy is, as crazy does, and that's all crazy is.

The geniune "CRAZY" is the result of a person (and that person, then, signing on other persons), with a serious problem in their perception of reality, making up a disease and chasing after something non-existent, and starting a worldwide movement, preying on the vulnerabilities of thousands of others, with the same problems in their perceptions.

"Crazy" is an outdated term, but it's still all too easy to use in reference to anyone exhibiting bizarre symptoms of mental illness, and I doubt that there's anyone who hasn't thrown the word around quite a bit in their vocabulary.

Without a diagnosis and an attempt to treat it, any number of mental disorders can make a person appear to be what society still, and, I'm afraid always will, refer to as, "crazy".

I've been called crazy plenty of times, but, to me, coming from the persons labelling me as such, I've considered it an honor. It's meant that I'm so far removed from their capacity to understand where I'm coming from, that it doesn't offend me in the least.

There's happy crazy and miserable crazy, though.

When I was younger, I saw things in many shades of gray, but as I've aged, I see too much in black and white, now.

I'm sorry for throwing the word around so carelessly.

 
At 11:08 PM, Blogger Smileykins said...

Now, I'm just being hypothetical, but with so many morgie people that seem to think that doctors are just no good, and of little use to them, other than to disagree, I wonder what it might be like if someone went in to see a doctor and said, "doctor, I think I have DOP".

Based on what seems to be the consensus of morgies, the doctor would be in disagreement, right?

Well, it's a well-known fact that doctors don't appreciate patients who come into their offices offering a diagnosis of themselves, and rightfully so.

So, maybe a doctor would...

Nah, they wouldn't. Would they?

(Yes, it's past my bedtime.)

 
At 7:29 AM, Anonymous Anonymous said...

Sorry if I caused any confusion... that last post, about not using the label "crazy" because it dissuades patients from accepting a diagnosis... it wasn't made by Winged Schiff. It was made by me (I'll call myself BabyJune here, I guess). I'm a first year medical student, formerly certified as an EMT, with a psych background in my undergrad.

So I make those arguments in the interest of being able to treat patients. Why don't they trust doctors or accept diagnoses like that? There are lots of reasons. Many can't accept the stigmatism associated with the "crazy" label. I can imagine it would be difficult, since it seems that in many cases, the sensation of creepy crawlies is the only symptom (there are no other "psychiatric" symptoms, delusional or otherwise). Others feel doctors simply aren't listening. Regardless, I think perpetuating the "crazy" line of thinking is counter-productive if you hope to persuade people with this sort of illness to at least try the treatments offered to them. Try looking at it from their side of things.

-BabyJune

 
At 3:30 AM, Blogger Tall Cotton said...

This comment has been removed by a blog administrator.

 
At 3:44 AM, Blogger Tall Cotton said...

Smileykins,

I think if a patient told their doctor that they have the false belief that they are infested with parasites that would be "Catch 22". Or, would it? Yes, it is getting late.

Tall Cotton

 
At 3:53 AM, Blogger Smileykins said...

My mistake. Excuse me, Baby Jane.

I'll thank you not to be so naive the next time around.

http://of-morgellons.blogspot.com/

 
At 10:25 AM, Anonymous Anonymous said...

"I have read up on DOP, but there is no clear psycological protocol to treat it."

That's a lie, it's not true. DOP and other monosymptomatic hypochondriosese have a clear set of protocol to treat it, including psychopharmacology and therapy. Go to Google, go to Scholar, and type in "delusional parasitosis." There is more published literature on the treatment than there even is on the condition.

 
At 2:33 PM, Anonymous Anonymous said...

For all that said Morgellons was untrue, I only hope are able to experience what you said was all in our mind, then it will be our turn to say "your exact words".

Maybe the only reality here is, when you get a bunch of ignorant people together, you'll always be guaranteed to be the one's eating your own stupid words.

Pitiful stupid ignorants you all are!

Maybe too, try alittle education, it will help you be a better person.

 
At 2:41 PM, Anonymous Anonymous said...

Smileykins,

We can only hope for you that your eyes one day will open, that is what they are for you know.

 
At 1:28 AM, Blogger Smileykins said...

Remain in the hell that you've made for yourself. You are damned.

Understand me, Anonymous.
You...ARE...damned.

 
At 1:42 AM, Blogger Tall Cotton said...

This comment has been removed by a blog administrator.

 
At 2:49 AM, Blogger Smileykins said...

Let me make you accutely aware of what a perfect simpleton you are, Anonymous, because as much as I have copied it out, providing links to my blog all over here, so that you, and every other ignorant assed morgie could see it, and shut the hell up about accusing people, namely me, here, of..."oh, you wouldn't dare talk that way if you knew, blah, blah, blah..."

Kiss my ass and remain in hell.

 
At 12:27 AM, Anonymous Anonymous said...

a lot of illnesses have a variety of symptoms that differ from afflicted to afflicted. that's fairly typical. additionally, symptoms are often patient-described so there is no universal language being used.

check out this illness: same symptoms as Morgellons...
http://members.cox.net/llyee/ncs_diagnosis.htm

 
At 12:39 AM, Blogger Margellons said...

NCS, besides being BS, is about as similar to Morgellons as any form of eczema.

 
At 2:56 AM, Blogger Tall Cotton said...

There are so many symptoms listed for Morgellons, that you could scoop up half the sick people in the world and place them under that one heading. In reality these people would have a very large variety of different illnesses. There's no such thing as Morgellons, so it can't be spreading. Due to all the media coverage, however, the belief that morgellons is spreading, is spreading. The believers are gaining in number.

Tall Cotton

 
At 8:32 PM, Blogger insideout said...

For those of you who do not believe hell just go hug someone that claims to have morgellons. And wait about 4 weeks to see for yourself!

 
At 10:11 PM, Blogger Tall Cotton said...

Some morgies may have diseases that are communicable. That doesn't mean they have Morgellons. Morgellons was invented by Mary L. No one has morgellons.

 
At 10:46 AM, Blogger Smileykins said...

Insideout, Smileykins and Tall Cotton, both, had the out-of-this-world symptoms which so many people, who believe that they have "morgellons disease", report.

It's obvious that the reasons "some people" recover is due to their addressing an underlying organic cause that has made them ill. Once the body (and along with it, comes the mind) is brought back into balance, all those freaky-assed things come to a screeching halt.

For "other people", who that doesn't apply to, there really is a lot of literature on the topic to explain it. It's rather vice-versa, for them. For them, it's fix the mind, first, and the body will follow, so to speak. There's no shame in trying that. It would be so damn worth getting over it.

I don't know which is your situation...whether you think you have this, or you know of someone who does, but there is a solution, I promise.

For the record, I would have ZERO amount of fear in hugging anyone who thinks that they have "morgellons". No fear whatsoever.

 

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